Wednesday, 22 October 2008

What a sh*te week

Yep i did swear... yes I meant every bleeeep of it.... and I just NEED to rant!!!!

Yesterday I took Katie to the Maxillo Facial unit in Glasgow. I was told it was ONLY to make a mould of her mouth for splint that was needed to help with her teeth grinding. She was sent for a face Xray and the machine went around her head as she sat still.

When we went back down we found out that her Jaw was sooooooo badly damaged that we are looking at a jaw replacement.... yes you read correctly... REPLACEMENT JAW JOINTS!!!

I HATE JRA with a passion, I hate what it has done to my child, the damage it has caused, the changes that it has made to my gorgeous girls body and the pain it leaves her in daily.

I hate that it has made me this whinging cow who only talks about JRA and the effect its having on my life. I try hard to stay positive but its hard.

It's like a third member of my family.... the naughty child who pokes and prods and constantly wants attention and eventually gets it.... there is no getting away from JRA.... there is NO ignoring bad behaviour. its here its got my full attention and hell there is sod all I can do to change it.

so if anyone reading this has some sanity..... PLEASE give me some... dont hog it all to yourself.


  1. (((((((((((((((hugs))))))))))))))
    you can have what little i have left hun. So sorry :(
    I support a boy at school with JRA but his isn't as bad as your daughters.
    Parents should never have to see their children suffer so much!!
    Thinking of you

  2. Sanity is beyond me but huge (((((hugs))))) to you both.

  3. Karen... hun!
    What can I say... I have no sanity to spare... but will be remembering you both in my thoughts and prayers.
    Feel free to e-mail me if you want to vent some anger / frustration... I'm always happy to listen.
    ((((((( XXXXX )))))))

  4. Karen sending huge hugs to you both

  5. ((((((hugs)))))). I hardly have any sanity but take as much as you need.
    Thinking of you both.

  6. Hi hun
    You know i'm always here for u to rant at , like u are for me hugs to u and Katie , love u lots Angie xxxxxxxxxxxxxxxxx

  7. ****** **** I am bleeping with you Karen, my eyes are damp while reading this. My word it's beyond me how {if there is indeed a better being up there} or why they would allow the hell of JRA to happen in children.
    I have arthritis and there are times I find it hard to endure, it's not RA though.
    I'm sorry Karen I just don't wuite know what to say other than [[[[hugs for you]]]] as I know that your DD is having lots of gentle hugs all the while.
    Thinking of you

  8. Awwww hugs for Katie xxx

    Can you update this blog please !

  9. Arh, thinking of you. And it makes you feel better to have a little rant once in a while. Take care

  10. Karen, The wee-un has brains and ambition and can take this un-comfortable situation in her stride. good luck to her, and I know she will get all the support she needs from you and the extended family and friends, and count us in there.